Publications
All newsletters and information pamphlets produced in print are also available in Braille, on audio cassette and computer disk so that they are accessible for our numerous blind members.
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Introducing LMBBS This booklet is a short guide to LMBB Syndrome for parents and friends
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The LMBBS Child At School This publication explains what a teacher of a child with LMBB Syndrome should know. It has been written particularly for teachers and others in the education field who may come across a child with the Syndrome. No one is an authority on this rare syndrome and each child is an individual but there are several shared characteristics which may have a significant effect upon the child's ability to learn, on his/her behaviour or on his/her relationships. If the teacher is aware of the nature of the condition, then he/she is better able to help the child develop skills to his/her maximum potential. The topics addressed in the context of educating the child with LMBB Syndrome are:
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LMBBS - More Than Meets The Eye
This medical booklet gives a wider perspective of the Syndrome and has been produced by the LMBB Society in conjunction with the Society's medical adviser, Professor Philip Beales, Medical Geneticist. It is aimed primarily at medical and healthcare professionals involved in the care of LMBB Syndrome patients, but also for parents wishing to know more about the Syndrome and the implications for those affected. It covers the following topics:
Read this leaflet as a word document More than meets the eye.doc (79.5kb) or as plain text (25.9kb) (Hint: save the leaflet by right clicking on the link) |
The Laurence-Moon-Bardet-Biedl Society Newsletter and Conference Report
The Newsletter is published twice yearly and it covers a wide range of issues for people with LMBBS and their families, carers and professionals involved in the care and management of those with LMBBS. It also gives information about the Society and updates on fundraising, conferences and research. There is always a personal profile and members regularly contribute to the content of the newsletter so expect to find articles on weight management and coping skills.
The conference report is published once a year, and covers the whole weekend of our annual conference. Reports from eminent speakers, personal perspectives and the childrens' activities. to read our newsletters and conference reports go to our conference and news pages.
To read our Newsletters & Conference reports please click on the links
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