Publications

All newsletters and information pamphlets produced in print are also available in Braille, on audio cassette and computer disk so that they are accessible for our numerous blind members.

 

More Than Meets the Eye LMBBS - More Than Meets The Eye

This medical booklet gives a wider perspective of the Syndrome and has been produced by the LMBB Society in conjunction with the Society's medical adviser, Professor  Philip Beales, Medical Geneticist. It is aimed primarily at medical and healthcare professionals involved in the care of LMBB Syndrome patients, but also for parents wishing to know more about the Syndrome and the implications for those affected. It covers the following topics:

  • History
  • Clinical Features and Presentation
  • Diagnosis
  • Genetics
  • Treatment
  • References and Useful Publications 

Read this leaflet as a word document More than meets the eye.doc (79.5kb) or as plain text (25.9kb)

(Hint: save the leaflet by right clicking on the link)

The Laurence-Moon-Bardet-Biedl Society Newsletter and Conference Report



The Newsletter is published twice yearly and it covers a wide range of issues for people with LMBBS and their families, carers and professionals involved in the care and management of those with LMBBS. It also gives information about the Society and updates on fundraising, conferences and research. There is always a personal profile and members regularly contribute to the content of the newsletter so expect to find articles on weight management and coping skills.

The conference report is published once a year, and covers the whole weekend of our annual conference.  Reports from eminent speakers, personal perspectives and the childrens' activities. to read our newsletters and conference reports go to our conference and news pages.

To read our Newsletters & Conference reports please click on the links
 

LMBBS - child at school

Who are we & how can we help

Leaflet basically outlining what LMBBS is about, our information, and our Annual Family Conference.

Read this leaflet as a word document Who are we & How can we help.doc or as plain text

(Hint: save the leaflet by right clicking on the link)

 

 

 

 

 

 
 
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