About
What is the LMBB Society?
The Laurence-Moon-Bardet-Biedl Society is the only registered charity supporting people with Laurence-Moon-Bardet-Biedl Syndrome, their families and carers. It provides information for them and the medical and other professions. All members of the Management Committee are volunteers. The Society produces newsletters, holds an annual family conference, and co-operates with research relevant to the Syndrome. Through the printing and distribution of information booklets, the Society has raised awareness of the Syndrome and, as a direct result, membership has more than trebled in the past two years. The Society now supports over 200 families and communicates with over 250 professionals involved in their care.
What can you find on our web site?
- The latest research on LMBBS can be found in our Research page
- Links to other related sites and our favourites are in our Links page
- Contact us using any of the email links on the the contact form found on the Contact page
- Help us to help you and to support the LMBB Society, find out more on our Support page
- Read some of the LMBB Society leaflets on the Publications page
- Finally your page, all the hot goss, tips, hints and more on Your Views page
- The latest and past newsletters and conference reports
- All the information regarding our Annual Family Conference
Other Pages in this section...
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