Laurence- Moon- Bardet -Biedl Society

WHO ARE WE
& 
HOW CAN WE HELP?
Registered Charity
No: 1027384

WHO ARE WE?
The Laurence -Moon-Bardet-Biedl-Society is a voluntary organisation, primarily supporting those with the syndrome, their families and/or carers.

The Society aims to raise awareness of this rare condition and produces information leaflets, newsletters and a report of our annual Conference.  We have a web page, www.lmbbs.org.uk, from which all of our publications can be downloaded.  There is also a help-line. All contact details are available on our webpage.








In addition, the Society aims to support those professionals who may have an interest in LMBB Syndrome.  

“The information and support made us feel we were not alone”
“After the shock of the diagnosis, it was a relief to find someone to talk to who knew how we felt”

WHAT IS LMBBS?
LMBBS is a rare, recessively inherited disorder which affects approximately 1 in 100,000 babies born.

The main symptoms of this complex condition are:

Visual impairment, often leading to blindness
Extra fingers and/or toes
Obesity
Developmental delay
Speech & co-ordination problems
Learning difficulties
Kidney problems
Other health problems may occur

Not all of the features are always present in those diagnosed as having  LMBBS, and each one can vary in severity and appearance.  



Annual Family Conference
Every year there is a weekend Family Conference offering a unique opportunity for those with the syndrome, their families and/or carers to meet and stay at a hotel centrally located in the UK.

The Saturday offers a full programme of eminent speakers, experts in their field, and relevant to the syndrome.  This is an excellent opportunity for those with the syndrome, and their families, to gain information and support.

The children and young adults enjoy a fun packed weekend, full of supervised activities

Positive comments we have received

…First time delegates – going home with a wealth of knowledge.  The whole day was unbelievable; it was all amazingly helpful...

…. Cannot appreciate enough the time and care given to look after our children ….

INFORMATION
Leaflets available

More than meets the eye
LMBBS Child at school
Who are we? 
   & How can we help?

Also available

Regular Newsletters
Conference Report


FUNDRAISING
The Society relies entirely on the generosity of members and  friends, donations, grants and sponsorship from individuals and companies.

Information about fundraising for the Society or becoming a ‘Friend of LMBBS’ or joining the ‘Weather Lottery’ and other fundraising schemes can be found at the contact details below









For all our contact details and more please visit our webpage
www.lmbbs.org.uk