The Laurence-Moon-Bardet-Biedl Society is the only registered charity supporting people with Laurence-Moon-Bardet-Biedl Syndrome, their families and carers. The aims of the Society, according to its constitution, are: to preserve and protect the health and promote the welfare of persons suffering from LMBBS, and to advance the education of the medical and educational professionals and the general public on the subject of LMBBS.
For information regarding the clinical features of LMBBS, click here for our information booklets.
All members of the Management Committee are volunteers. They have children/grandchildren with LMBBS or have the syndrome themselves, and they willingly give up their time to provide support, raise funds and generally do as much as they can to keep the Society moving forwards.
Accessible Cycling Day at Herne Hill Velodrome with Wheels for Wellbeing – Saturday 20th June from 2pm-4pm (free of charge) Contact Angela Scudder for more information firstname.lastname@example.org or 07958 204414
Family Day at Twycross Zoo – Saturday 11th July - £10 per BBS Family – contact Jacquie Kearnes for more information email@example.com or 07929 791496
17th, 18th, 19th April at the Hilton Hotel, Northampton.
View the delegates information booklet here, as a pdf file.
For information and a booking form for the conference please look under the conference tab on the website or contact Christine Humphreys, +44(0)1633 718415, firstname.lastname@example.org
The Society produces newsletters, conference reports, holds an annual family conference, and co-operates with research relevant to the Syndrome. Through the printing and distribution of information booklets, the Society has raised awareness of the Syndrome and, as a direct result, membership has more than trebled in the past two years. The Society now supports over 200 families and communicates with over 250 professionals involved in their care.
There are no membership fees and no charges are made for information - the work of the Society relies entirely on donations. Please look at our Support Page for details of how you can help.
*Seen through other eyes - The Seeing Ear poetry competition*
If you know someone 18 or under who is visually impaired, has dyslexia or a disability that makes it difficult to read printed books they could win £150 in our first ever poetry competition! Entry is free and as well as £150 for first prize there will be runners up prizes and the chance to be included in our competition anthology. Please see http://www.seeingear.org/the-seeing-ear-poetry-competition for more details.
You can now donate online through www.justgiving.com
We thank you all for your continued support
LMBBS is a registered charity
Charity no: 1027384
Chairman Mr Philip Humphreys