Jeans for Genes Day - 19/9/2014

Welcome....

The Laurence-Moon-Bardet-Biedl Society is the only registered charity supporting people with Laurence-Moon-Bardet-Biedl Syndrome, their families and carers. The aims of the Society, according to its constitution, are: to preserve and protect the health and promote the welfare of persons suffering from LMBBS, and to advance the education of the medical and educational professionals and the general public on the subject of LMBBS.

For information regarding the clinical features of LMBBS, click here for our information booklets.

All members of the Management Committee are volunteers. They have children/grandchildren with LMBBS or have the syndrome themselves, and they willingly give up their time to provide support, raise funds and generally do as much as they can to keep the Society moving forwards.

Conference 2014

25/26/27 April 2014 at the Hilton Hotel, Northampton.  For information and a booking form for the conference please contact Christine Humphreys, +44(0)1633  718415, chris.humphreys4@ntlworld.com

The Gang

LmbbsThe Society produces newsletters, conference reports, holds an annual family conference, and co-operates with research relevant to the Syndrome. Through the printing and distribution of information booklets, BUY....the Society has raised awareness of the Syndrome and, as a direct result, membership has more than trebled in the past two years. The Society now supports over 200 families and communicates with over 250 professionals involved in their care.

There are no membership fees and no charges are made for information - the work of the Society relies entirely on donations. Please look at our Support Page for details of how you can help.
 


"We are very excited to report that LMBBS have been successful in their bid for a grant from Genetic Disorders UK as part of their Jeans for Genes campaign 2014. The grant is to enable us to employ a Child Development Worker to provide specific support and activity opportunities for our families and young people.  More information will be available over the coming months. Our thanks to everyone at Genetic Disorders UK, we look forward to working with them over the coming year. http://www.jeansforgenesday.org/.”
 

Just Giving

You can now donate online through www.justgiving.com

We thank you all for your continued support


LMBBS is a registered charity

Charity no: 1027384
Office of Scottish Charity Regulator SC041839

Chairman  Mr Philip Humphreys
President  Professor Philip Beales BSc LMSSA MD FRCP
Patrons     Baroness Helena Kennedy of the Shaws Q.C
                 Ryan Jones BSc (Hons)

FSCB - give with confidence


 

 
 


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The Laurence-Moon-Bardet-Biedl Society is the only registered charity supporting people with Laurence-Moon-Bardet-Biedl Syndrome, their families and carers. The aims of the Society, according to its constitution, are: to preserve and protect the health and promote the welfare of persons suffering from LMBBS, and to advance the education of the medical and educational professionals and the general public on the subject of LMBBS. The Society produces newsletters, holds an annual family conference, BUY....and co-operates with research relevant to the Syndrome. Through the printing and distribution of information booklets, the Society has raised awareness of the Syndrome and, as a direct result, membership has more than trebled in the past two years. The Society now supports over 200 families and communicates with over 250 professionals involved in their care.