Welcome...

The Laurence-Moon-Bardet-Biedl Society is the only registered charity supporting people with Laurence-Moon-Bardet-Biedl Syndrome, their families and carers. The aims of the Society, according to its constitution, are: to preserve and protect the health and promote the welfare of persons suffering from LMBBS, and to advance the education of the medical and educational professionals and the general public on the subject of LMBBS.

For information regarding the clinical features of LMBBS, click here for our information booklets.

All members of the Management Committee are volunteers. They have children/grandchildren with LMBBS or have the syndrome themselves, and they willingly give up their time to provide support, raise funds and generally do as much as they can to keep the Society moving forwards.

The Gang

The Society produces newsletters, conference reports, holds an annual family conference, and co-operates with research relevant to the Syndrome. Through the printing and distribution of information booklets, the Society has raised awareness of the Syndrome and, as a direct result, membership has more than trebled in the past two years. The Society now supports over 200 families and communicates with over 250 professionals involved in their care.

There are no membership fees and no charges are made for information - the work of the Society relies entirely on donations. Please look at our Support Page for details of how you can help.

You can now donate online through www.justgiving.com

Radio 4 "We were delighted to have been offered a slot for a BBC Radio 4 Appeal on Sunday 27th June 2010. The broadcast took place at 07.55 and 21.26 and was repeated on the following Thursday at 15.27. The frequencies are FM 92.4-94.6, LW198."

Download the script HERE

You can still hear our appeal at www.bbc.co.uk/radio4/appeal Also to hear Joe's mum, please visit ww w.facebook.com/bbcradio4/appeal.

To date the BBC Radio 4 Appeal has raised over £7,000.

We thank you all for your continued support

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”THE BIG “S”, a Summer Sundae” of activities

A Sausage Sizzle (BBQ), a Sixty’s disco, a Sponsored Stroll, or Sunflower-growing ....
Click for more...

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The Laurence-Moon-Bardet-Biedl Society is the only registered charity supporting people with Laurence-Moon-Bardet-Biedl Syndrome, their families and carers. The aims of the Society, according to its constitution, are: to preserve and protect the health and promote the welfare of persons suffering from LMBBS, and to advance the education of the medical and educational professionals and the general public on the subject of LMBBS. The Society produces newsletters, holds an annual family conference, BUY....and co-operates with research relevant to the Syndrome. Through the printing and distribution of information booklets, the Society has raised awareness of the Syndrome and, as a direct result, membership has more than trebled in the past two years. The Society now supports over 200 families and communicates with over 250 professionals involved in their care.